COVID-19 Case Surveillance Restricted Access Detailed Data
Note:
Reporting of new COVID-19 Case Surveillance data will be discontinued July 1, 2024, to align with the process of removing SARS-CoV-2 infections [COVID-19 cases] from the list of nationally notifiable diseases. Although these data will continue to be publicly available, the dataset will no longer be updated.
Authorizations to collect certain public health data expired at the end of the U.S. public health emergency declaration on May 11, 2023. The following jurisdictions discontinued COVID-19 case notifications to CDC: Iowa [11/8/21], Kansas [5/12/23], Kentucky [1/1/24], Louisiana [10/31/23], New Hampshire [5/23/23], and Oklahoma [5/2/23]. Please note that these jurisdictions will not routinely send new case data after the dates indicated. As of 7/13/23, case notifications from Oregon will only include pediatric cases resulting in death.
This case surveillance publicly available dataset has 33 elements for all COVID-19 cases shared with CDC and includes demographics, geography [county and state of residence], any exposure history, disease severity indicators and outcomes, and presence of any underlying medical conditions and risk behaviors. This dataset requires a registration process and a data use agreement.
April 7, 2022: An adjustment was made to CDC’s cleaning algorithm for COVID-19 line level case notification data. An assumption in CDC's algorithm led to misclassifying deaths that were not COVID-19 related. The algorithm has since been revised, and this dataset update reflects corrected individual level information about death status for all cases collected to date.
June 9, 2022: Two new data elements, “race” and “ethnicity”, were added to the dataset to provide information on race and Hispanic origin, respectively. These two new elements were to replace the column “race_ethnicity_combined” that encoded the combined race and Hispanic origin information in previous versions. Codes and related details used for these two new elements are available at: Data Dictionary for the COVID-19 Case Surveillance Restricted Access Detailed Data. Conversion logic is also provided in the data dictionary for users to derive a combined race and Hispanic origin item similar to the item “race_ethnicity_combined” in previous release, using the current “race” and “ethnicity” variables.
June 25, 2024: An adjustment was made to CDC’s cleaning algorithm for COVID-19 line level case notification data. An assumption in CDC's algorithm led to misclassification of pediatric deaths from New York State. The algorithm has since been revised, and this dataset update reflects corrected individual level information about death status for all cases collected to date for New York State.
June 26, 2024: Reported COVID-19 cases resulting in death of Texas residents should be interpreted with caution. In November 2023, CDC and Texas Department of State Health Services [DSHS] identified an unresolved issue in the demographics of COVID-19 patient case deaths as reported to CDC by Texas DSHS. As a result, Texas case deaths reported to COVID-19 line level case notification data are disproportionate compared with reporting by Texas DSHS and National Center for Health Statistics [NCHS]. Because of this issue, an adjustment could not be implemented to correct the misclassifications. However, provisional COVID-19 death counts from the National Center for Health Statistics [NCHS] are updated with information from death certificates and offers accurate death counts.”
CDC has three COVID-19 case surveillance datasets:
- COVID-19 Case Surveillance Public Use Data with Geography: Public use, patient-level dataset with clinical data [including symptoms], demographics, and county and state of residence. [19 data elements]
- COVID-19 Case Surveillance Public Use Data: Public use, patient-level dataset with clinical and symptom data and demographics, with no geographic data. [12 data elements]
- COVID-19 Case Surveillance Restricted Access Detailed Data: Restricted access, patient-level dataset with clinical and symptom data, demographics, and state and county of residence. Access requires a registration process and a data use agreement. [33 data elements]
Overview
The COVID-19 case surveillance database includes individual-level data reported to U.S. states and autonomous reporting entities, including New York City and the District of Columbia [D.C.], as well as U.S. territories and affiliates. On April 5, 2020, COVID-19 was added to the Nationally Notifiable Condition List and classified as “immediately notifiable, urgent [within 24 hours]” by a Council of State and Territorial Epidemiologists [CSTE] Interim Position Statement [Interim-20-ID-01]. CSTE updated the position statement on August 5, 2020, to clarify the interpretation of antigen detection tests and serologic test results within the case classification [Interim-20-ID-02]. The statement also recommended that all states and territories enact laws to make COVID-19 reportable in their jurisdiction, and that jurisdictions conducting surveillance should submit case notifications to CDC. COVID-19 case surveillance data are collected by jurisdictions and reported voluntarily to CDC. COVID-19 case surveillance data are collected by jurisdictions and are shared voluntarily with CDC. For more information, visit: https://www.cdc.gov/coronavirus/2019-ncov/covid-data/about-us-cases-deaths.html. The deidentified data in the restricted access dataset include demographic characteristics, state and county of residence, any exposure history, disease severity indicators and outcomes, clinical data, laboratory diagnostic test results, and comorbidities. All data elements can be found on the COVID-19 case report form located at www.cdc.gov/coronavirus/2019-ncov/downloads/pui-form.pdf. COVID-19 case reports have been routinely submitted using standardized case reporting forms. On April 5, 2020, CSTE released an Interim Position Statement with national surveillance case definitions for COVID-19 included. Current versions of these case definitions are available here: https://ndc.services.cdc.gov/case-definitions/coronavirus-disease-2019-2021/. CSTE updated the position statement on August 5, 2020, to clarify the interpretation of antigen detection tests and serologic test results within the case classification. All cases reported on or after were requested to be shared by public health departments to CDC using the standardized case definitions for lab-confirmed or probable cases. On May 5, 2020, the standardized case reporting form was revised. Case reporting using this new form is ongoing among U.S. states and territories.Data are Considered Provisional
- The COVID-19 case surveillance data are dynamic; case reports can be modified at any time by the jurisdictions sharing COVID-19 data with CDC. CDC may update prior cases shared with CDC based on any updated information from jurisdictions. For instance, as new information is gathered about previously reported cases, health departments provide updated data to CDC. As more information and data become available, analyses might find changes in surveillance data and trends during a previously reported time window. Data may also be shared late with CDC due to the volume of COVID-19 cases.
- Annual finalized data: To create the final NNDSS data used in the annual tables, CDC works carefully with the reporting jurisdictions to reconcile the data received during the year until each state or territorial epidemiologist confirms that the data from their area are correct.
Data Limitations
To learn more about the limitations in using case surveillance data, visit FAQ: COVID-19 Data and Surveillance.Data Quality Assurance Procedures
CDC’s Case Surveillance Section routinely performs data quality assurance procedures [i.e., ongoing corrections and logic checks to address data errors]. To date, the following data cleaning steps have been implemented:- Questions that have been left unanswered [blank] on the case report form are reclassified to a Missing value, if applicable to the question. For example, in the question "Was the individual hospitalized?" where the possible answer choices include "Yes," "No," or "Unknown," the blank value is recoded to "Missing" because the case report form did not include a response to the question.
- Logic checks are performed for date data. If an illogical date has been provided, CDC reviews the data with the reporting jurisdiction. For example, if a symptom onset date in the future is reported to CDC, this value is set to null until the reporting jurisdiction updates the date appropriately.
- Additional data quality processing to recode free text data is ongoing. Data on symptoms, race, ethnicity, and healthcare worker status have been prioritized.
Data Suppression
To prevent release of data that could be used to identify people, data cells are suppressed for low frequency [<11 COVID-19 case records with a given values]. Suppression includes low frequency combinations of case month, geographic characteristics [county and state of residence], and demographic characteristics [sex, age group, race, and ethnicity]. Suppressed values are re-coded to the NA answer option; records with data suppression are never removed.Additional COVID-19 Data
COVID-19 data are available to the public as summary or aggregate count files, including total counts of cases and deaths by state and by county. These and other COVID-19 data are available from multiple public locations: COVID Data Tracker; United States COVID-19 Cases and Deaths by State; COVID-19 Vaccination Reporting Data Systems; and COVID-19 Death Data and Resources. Notes: March 1, 2022: The "COVID-19 Case Surveillance Restricted Access Detailed Data" will be updated on a monthly basis.April 7, 2022: An adjustment was made to CDC’s cleaning algorithm for COVID-19 line level case notification data. An assumption in CDC's algorithm led to misclassifying deaths that were not COVID-19 related. The algorithm has since been revised, and this dataset update reflects corrected individual level information about death status for all cases collected to date.
June 9, 2022: Two new data elements, “race” and “ethnicity”, were added to the dataset to provide information on race and Hispanic origin, respectively. These two new elements were to replace the column “race_ethnicity_combined” that encoded the combined race and Hispanic origin information in previous versions. Codes and related details used for these two new elements are available at: Data Dictionary for the COVID-19 Case Surveillance Restricted Access Detailed Data. Conversion logic is also provided in the data dictionary for users to derive a combined race and Hispanic origin item similar to the item “race_ethnicity_combined” in previous release, using the current “race” and “ethnicity” variables.
June 25, 2024: An adjustment was made to CDC’s cleaning algorithm for COVID-19 line level case notification data. An assumption in CDC's algorithm led to misclassification of pediatric deaths from New York State. The algorithm has since been revised, and this dataset update reflects corrected individual level information about death status for all cases collected to date for New York State.
June 26, 2024: Reported COVID-19 cases resulting in death of Texas residents should be interpreted with caution. In November 2023, CDC and Texas Department of State Health Services [DSHS] identified an unresolved issue in the demographics of COVID-19 patient case deaths as reported to CDC by Texas DSHS. As a result, Texas case deaths reported to COVID-19 line level case notification data are disproportionate compared with reporting by Texas DSHS and National Center for Health Statistics [NCHS]. Because of this issue, an adjustment could not be implemented to correct the misclassifications. However, provisional COVID-19 death counts from the National Center for Health Statistics [NCHS] are updated with information from death certificates and offers accurate death counts.”